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Sometimes she wakes up with involuntary eye movement so severe that she can’t even walk to the toilet.

“Living with MS, there are all these little things that normal, healthy people don’t experience but that become a daily thing for us,” she tells “It’s now just second nature for me to carry heavier things in my right hand.

The 26-year-old is one of 4,100 people with the condition who were refused personal independence payment (PIP) last year, amounting to nearly a third of all MS sufferers who applied for the benefit.

I wasn’t asked any questions about how my disability affects me.

She gets excruciating nerve and bone pain on a daily basis.

The only reason she doesn’t constantly fall over is because she wears a foot brace to steady her foot drop.

A further 6 per cent (1,100) qualified for PIP initially but were then rejected after a reassessment – despite MS being a long-term progressive condition, for which there currently is no cure.

“It’s massively insulting you go through years of wondering what’s wrong with you, you finally get an answer, and then you’ve got someone who sits there for 20 minutes and decides you’re not disabled enough to receive any help,” Aliie says.

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